I have some kind of really severe collagen disorder or injury propensity which seems to have come from Lyme disease, Bartonella, and mold illness/CIRS.
Some ways it affects me:
-Difficult to find clothing that does not injure my tendons and ligaments or contribute to organ prolapse susceptibility. I wear a lot of stretchy, lightweight clothes that avoid pressure on parts of my body that are prone to injury.
-It is dangerous for me to shake hands with strangers (who can hurt my shoulders or elbows).
-Tendency toward flat feet and bunions.
-G-forces can injure me. I prefer taking turns slowly and braking and accelerating slowly in the car. I dislike curvy roads since curving back and forth tends to pull on my ligaments and injure me.
-Propensity for stress fractures. I have had about ten stress fractures or bone strains in seven years.
-Poor healing from injuries, and very affected by minor injuries. e.g., had serious complications from a very minor rear-end car accident that caused no observable damage to my car.
-My Achilles tendon has chronic inflammation that can be aggravated by driving. It's hard to hold the gas pedal down consistently; I usually let it up to take breaks.
When did this develop? Not after I first got Lyme disease, but when I stopped antibiotics three years later to try the Rife machine. Then it became much worse when I moved to a water-damaged apartment and got mold poisoning. It felt like my body was Jello and barely holding together.
My best guess at this point is that it has to do with a deficiency of tenascin, which is made by the TNXB gene on the RCCX cluster. That would explain why my tendons and ligaments are very affected and also my collagen and elastin both seem to be affected, but I don't have classic EDS symptoms.
If you have this, please leave a comment on this post!
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